Of course I have been writing as politely as possible to who ever I can think of asking for report on MRI which was the third revised MRI way back in summer 2025. Clearly I should not have written.

Yesterday, I received a phone call from a random doctor on a random number.
This was unexpected, unannounced, and I should have not answered as it was maybe a scam call or a parcel delivery notification that turns out to be for the neighbour.

I answered anyway. Idiot that I am.

A lady spoke, did not check who I was am or will be, nor who she was. She explained—rapidly, cheerfully, and with the confidence of someone who would not be affected by the consequences—that the MDT review of my 2025 MRI shows nothing unusual.
Excellent. Love that for my MRI. Thrilled it’s living its best life.

As a result, Dipstick will not need to see me ever again, unless I get a uti .
Which is a bit like saying the fire brigade will only attend if my house is on fire, knowing full well I live in a permanent bonfire. .

At that point, I’m told, there would be admission and new imaging.
How this would work in practice—given that I live outside London and experience UTIs as in constant never ending. I assume I simply try to remember to get a uti in London, not take antibiotics and be MRI-ready, through sheer force of desperation.

I was also told that a CNS might be arranging an appointment.
Possibly. Maybe. One day. In a future timeline. I think this refers to the SNS (implant) CNS annual review, but at this stage it’s hard to tell whether this is an actual plan or just a joke for all the chuckling departments.

I was advised to follow Infectious Diseases treatment plans, which is fascinating because Infectious Diseases specifically requested urology involvement. I do of course follow their plans laid out in the last appointment at the beginning of the year.

This feels less like a care pathway and more like a crazy game of clinical pass-the-parcel, where everyone smiles while gently placing the responsibility back to some other random person.

I do not, incidentally, have an appointment with Infectious Diseases in the near future. There is one I think in November.

So now I exist in a sort of abyss of despair:

Nothing is wrong

Something is definitely wrong

No one is in charge

No one cares

There is no direct contact person.

I am, apparently, meant to wait until I “inevitably” have another UTI, at which point I should… do something. Where. With whom. And how I magically access London-based imaging from several counties away remains a mystery to be solved in the moment, presumably while febrile. She had not heard of the ultrasound I’d had had recently. See blog: Mary Empanada. Oh well who cares…waste of time and money doing an ultrasound then not reporting on it let alone speaking to the patient.

I am not trying to be difficult. I am simply trying to understand:

what follow-up I should expect

who, if anyone, is overseeing my care

and what the actual process is when my body once again does the thing it reliably does

Until then, I will continue to exist in a state of low-level despair, clutching my phone, awaiting either a UTI or a CNS, whichever arrives first.

Meanwhile TDl continue to send me random invoices for MSU tests. IThe amounts are weird like £70.14, £102.61. I give up. Actually need to get a test in so I guess open cheque book situation just keep sending tests paying random invoices and hope.

Latest dentistry appointment got cancelled. That meant I gained two hours into a crazy week. Mrs Restorative was ill – it helps to know why these things are cancelled. Next appointment June. bang goes my dream of teeth for the end of May. Ah well.

Nothing from Mr Maxfax so no teeth and numb face continue…who cares?

Coincidentally today, I am at a health research conference minutes away from UCLh. I really should have made sure I did not swallow antibiotics before I came..that way I could have spent the day attempting to be admitted to UCLH ..but I did not.

A couple of take homes from the conference: Quality research should involve patients. – weirdly dipstick is involved in UTI research. Just saying.

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