Quick update on a dark cold afternoon.

I think I last wrote after the Swedish adventure.

Since then Patsy has been pewking and I have been  pewking and neuking.

To explain. Patsy + Chemo = Pewking. We have swapped tons of jolly banter to distract. Patsy is a bit better now and writing a piece for a magazine to accompany the ‘Stockholm Pippi Photos’.

Meanwhile, I have had  many communications with Dip.  Having sworn I would never ever see him EVER again on account of the disasters of the last few weeks .​

He rang. Shock. He apologised. Shock. He explained his office was in disarray. He explained he had expected to see me. In fact he had me listed for 3 appointments in one clinic. ( no surprises there, it is customary to tell the patient she has an appointment!)

He suggested I see him the very next day. I relented. I went. He was not late , well only 20 minutes. He did remember my name.

He  organised nuclear imaging. Whoooohoooo. Hence the newking.

A bit of CT imaging too just for good measure.

A bit of resetting of the SNS implant too.

His last effort seemed to make my toes curl, shock!  so we’ve appealed to the rep again.

I in fact saw him again this week. He didn’t quite get my name right, but nearly, never mind.

This week he was tired. He yawned a lot. No stifle, just big old tired yawns. Am I really that boring?  He also, banged his head on his desk in frustration that I appear to have another infection ( and the pewks).

That is ok I think. At least he understands. I feel like banging my head on a weekly basis…. Would this be empathy?

I also saw a colleague of his . An amazing awesome lovely lady doctor. Honestly you’d think we’d known each other for years. We can chat for England. We quickly covered old ground, we giggled about Dipstick ( she’d been at a dinner with him) but of course she said, what happens on a dinner stays on a dinner! The mind boggles. She is groovy. She is innovative.She has an idea, how about iv at home #wow…keep me out of hospital plan…….but we will have to wait for NHSland to organise it…could be next year some time. No rush then. She even asked how I managed to get from home to clinic, pewking  and uti ‘ ing. She seems to care…like in bucketfuls. It really helps. It is the little things. She also remembers my name. #notrocketscience

Oh and as I left for Dip’s clinic…she called out….’ Give ‘Dipstick’ a kiss !’

I grinned and yelled back ‘YOU MUST BE BLOODY JOKING’…..god knows what the assembled bladder patients waiting outside thought….Did I care? Not a jot…

So I am waiting for results…antibiotics…and innovation…