I cannot remember where I’d got to explaining the medical events of the last month. However, by amazing luck I was able to survive an 8am GP phone queue. Saw their paramedic. Who decided I had covid like chest infection. LFT test every day. Always negative. She also sent a urine sample off. After a bit of persuasion.

With the help of Consultant Infectious Diseases (CID)and Jerome, we sorted meds for uti and non covid- covid. CID says negative LFT seem to be prevalent in those lacking tonsils and where bugs not in nose ! #always-an-outlier

The malfunctioning SNS situation has got no further. I was supposed to have catch up with CNS in charge of SNS. I was meant to see Dipstick F2F. and get advice from Medtronic. But poor Nurse CNS Bingo who seems to be dumped with me again, must’ve hit the ground running when he returned to work after illness. So absolutely nothing at all has happened. Next appointment 2023.

As for MDT report after APRIL MRI of residue -of -ureter -bladder -on -the -right? Of course officially I know nothing. Why on earth have an MDT about a patient but not tell the patient. WTF. Unofficially I know they want to do an MRI ( again?) and further tests. Am I bovvered. ? You bet I am. However I did get to my god-daughter’s wedding.

It was in Cornwall. Beautiful sunny weekend. A lot of wild swimming in lake . The close friends /family in a field, in sparse tipis. No glamping!LFT tests duly taken before departure. Both negative. Good to go.

Now, I’m up for most things but camping has never quite been my forté. Let alone trying to manage self catheterising in a field. But not one to refuse an adventure off we set. I’d acquired air beds. Sleeping bags. Kettle. Camp gas thingy. Cold box. Torches. Did a practice (for an hour) with my little grandsons.

So there we were, me pumping up the air beds in the sweaty tipi. Daniel reversing the car down a precarious slope to the assigned car park.

First night went well, pizza and beers with the bride, groom and families. Found an electric plug by crawling into the dimly lit marquee to recharge my spine implant. As night fell rooky errors began to pile up. Returned to tipi in the dark. Couldn’t find torches. Daniel stumbled through the rabbits to the compost toilets. Meanwhile I fumbled around to find drugs and catheters and all the accoutrements of bladder dysfunction. Hah I would be so great at Glastonbury where I hear the contraption known as a ‘she -wee’ is a best seller.

Our adjoining air beds meant every time he moved I bounced off the edge. After much laughter and coughing,. ( Yes still a chest infection/asthma), I just slept on the ground using my meds bag as a pillow. Great wedding. No need for beauty worries. No electricity for hair dryers, too hot for too much clothing, minimal or no makeup. The bride, groom and all of us were swimming just before kick off. Lake swimming is absolutely perfect for leaky m l>. Koimj)8: .

Vanilla ice cream -the ultimate test. N=1. Stratified. ! Anecdotal evidence. Hypothetically if really ill no ice cream. If ok ice cream imbibed.

He had an ice cream cone.!

My coughing, loss of voice and sense that inevitably bladder infection was reigniting, led me to suggest we both tried a LFT as we were due at a funeral on our return. Bugger me. His was positive. Mine negative.

I went to funeral. He did not!
That’s life!