Back to London once more.

House of Commons for a reception for The Urology Fund. Not entirely sure if I would know anyone there. Not only that but with civil servant Sue Gray’s publication re party gate, there were  press cameras everywhere inside the corridors of power. Helicopters circling above and security measures heightened. 

As we awaited in central hall the gidddy atmosphere became infectious. We laughed and joked, tried to catch Laura Kuenssberg’s eye. I directed a man to the loos but belatedly realised it was only the ladies. Anyhow the reception itself got going. Most MPs had disappeared for by-elections and party-gate. So the Charity sector and suppliers did all the talking. As ever the best speech? From awesome spinal injuries patient. Making us laugh about using the gradient slope into House of C as a wheelchair lift off platform as his chair gathered speed before security! He appealed for patients to be involved in decisions. He explained as we patients do well how to self cath. Graphic!

A lot of talk about choice and a speaker from some department of something told us he shopped at Aldi. Because it had less choice. Tesco Sainsburys etc had too much choice. Therefore we patients should have limited choice. Errrr. I had a lot to say about that plan. However. Weirdly there were no Q And As!
I was introduced to a patron of TUF. I myopically peered at her name badge and remarked that she had the same name as Daniel’s favourite wine taster. Actually she WAS indeed Jane MacQuitty. Quaffing House of Commons wine and offering an autograph on a catheter pamphlet for D! The raucous laughter at our end of the room soon attracted quite a crowd

Then it was off into the streets of London. Uber ( after a few rejections ***tards) and to youngest son’s flat. That was wonderful watching the lights all over london.

Hospital appointment this morning. Checking the Sacral Nerve Stimulator. SNS.
It’s sending off shocks. It’s very painful. I’ve turned it off. After a tetchy start Clinical Nurse Specialist CNS decided I was not making it up. Decided the SNS might be faulty. No shit Sherlock.

I asked her if she knew about the MRI report. Not a clue was the answer. 

MDT ? No idea. 

Dipstick? She thought she’d try and find him. Tell him what was happening. 

She liked my neon socks. I had inadvertently packed odd weird socks!

Then back home to join yet more virtual NHS interviews as part of a panel set up for new centres of excellence. They are absolutely brilliant and what they have achieved is incredible .

Respiratory- ? appointment by phone has been offered by Bart’s. How the hell does anyone do an asthma check over the phone? FFS.

GP? Not a clue about catheters utis or anything bladder wise. But my friend A and I have decided to sort them out. Watch this space!

However, Saintly GP of old is now Dean of something somewhere. He’s suggesting I join some GP trainees and tell them how it is. 🤣