Last few weeks a bit of a bugger. Tried to line up the magical ‘teflon’ instillation recommended by Montmerency. But alas bug had hit. So trialled into London on the commuter train, no stilettos! to be told to go back home collect overnight stuff ( drugs, chargers for the stimulator, toothbrush)and be admitted for IV antibiotics. 
Seemed a good idea at the time. Dipstick doesn’t know where Bedford is so it all took a bit longer than thought. His secretary finally gave me the go ahead at 5pm. Got there by 7.00pm. IV in. Cup tea and asleep in seconds. Not forgetting to charge the spinal battery…that only takes an hour…
Morning dawned. Dipstick bounced in seemed happy. Husband D popped in said hello thought I looked ‘flushed’.
Daughter L texted, ‘I’ll bring a coffee over this morning’. Great.
Next iv bag went up….do not remember a lot after that. Lots of nurses and doctors in room. Oxygen. Heart whatsit. drips. up. drips in. drips out. L bouncing in announcing ‘coffee…..ooops’ poor her. Anyway long and short of it is I am now allergic to another antibiotic. xrays and ECGs etc verify I am in fact ok. Jerome came to distract..we thought black box thoughts .
Went home. Felt terrible. Missed Dr M’s birthday bash. Missed Bridge M’s amazing Birthday lunch. arghhh.
Next week. Have another go. After much Dipsticking of times dates rearranging school . Changed the plans so many times I think school thought I was having a breakdown. Finally got 12 hours notice to go back in. Frantically typed up stuff all night. Honestly takes longer to type up a cover lesson than it does to teach it. Next day: Admitted. Dipstick started by saying: ‘I’ll try not to kill you this week’. Was I meant to laugh?
Anyhow, Teflon in. Bloody painful uncomfortable hour. Nurses and RMO tried to ring him, text him anything to get advice. Could not get hold of him. So I made the decision to empty the teflon. Then was ok ish. Went home next day stayed in London just in case. Felt horrible. Rang Dipstick sec as instructed to arrange for next instillation ( weekly for 6 weeks). No one seemed to know what to arrange. Dipstick himself rang. Suggested I go back into hospital. I just could not imagine how I could drag myself all the way back. I promised him I would if GP would not see me. Managed to see GP hurrah. Loaded up with steroids. Could not breathe. Chest so tight you’d think I’d been run over. Anyhow, texted Dipstick to tell him. As promised. His reply ‘OK’ was immediate. So that was good, was it?
But then trying to arrange next week. Just no messages back. Even his poor secretary said she could not book anything as she had no idea what was needed.
So its bank holiday all doctors radio silence, must be having a nice holiday somewhere half term too so not much will happen for a week or so… I can breathe a bit better. But its not great. No idea what the plan is for this week reckon there isn’t a plan. But I am only the patient it really doesn’t matter does it?
Meanwhile G here for the weekend. Phew. Conjuring up the meals the BBQ the pizza oven the ‘brassiere’ ( we never quite had the heart to tell him its a brazier, so the word has stuck). His A is doing party planning for us. July. Kids are on it…scheming with my brother. Could be pyrotechnics I reckon. It’ll be good.





in answer to an email just received … in desperation hospital said they couldn’t find my consultant. Suggested I call 999 for an ambulance. REALLY? Yes really. I didn’t. I couldn’t. I wouldn’t.
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so now what
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