a few unedited clips too:
Busy week…
I was honoured to speak at the Brighton BAUN Conference. Fabulous room , sea view, fell asleep on arrival in the gi-normous bed. Woke up to find I was already late for dinner…..Sat next to lovely Italian Urological Surgeon on the top table. Oh my days …my’tourettes’…if I said ‘peed off ‘once I said it 100 times. Lovely table, fabulous and worthy prize winner. Tourettes moment as I announced the prize I said: ‘Fantastic and worthy winner…she manages to overcome the hassles of admin for her patients by using her own mobile phone’…etc…I then said: ‘Wonderful a lady after my own heart, cut the crap…get it sorted’. The raucous laughter was not worthy of the words uttered. 
Early night, not least because it takes an hour to charge up the new spinal device each night…the Nevro….its great will be hugely better once the 72 ( apparently) staples are removed from my back. But the wild November waves were better than any medical intervention through the night.
wore twice and I said ‘peed’ off 50 times. Oh. Met the fab JJ nurse who programmed my SNS and who had attempted to do my annual check up last year via Jerome. This had been thwarted by some inane management rule that prevented her access to his clinic. frrrrr. Met editor and was invited to co-author a paper for the Munich European Urology Conference in March. WhatamIlike? frrrr.
I was staggered at the ridiculousness of Phlebotomy in a cupboard with no windows, Oncology, in a corner at the end of a long stairway and corridor. Again NO windows. Nothing on the walls ( but Eddie is donating pictures). Who is the architect? God knows they need a patient perspective for goodness sake.
ured to be invited to attend the All Party Political Group (APPG) Continence meeting on Wednesday 18th November.This was amazing. We had our own name plates, microphones and very serious faces. Well I tried. I made myself scribble ‘do not swear’ on my notepad. Eddie had been training me well! Then the eloquent Dr Clare Gerada mentioned a Prof Lee ( I think that was the name). Apparently this highly regarded Consultant in times gone by, insisted on demonstrating catheter usage by dropping his trousers and performing said task… hah! So tourettes. What do I say when it comes to my turn to speak…er…er…’ I am a catheter user but I will not be dropping my trousers..’ Dr G interjected: ‘ oh do oh do’…
nearly made it without embarrassment …I do recall asking the CMO delegates to send her ie Sally my very best wishes and a x. You see I used to rent room in her house after we had met in Madrid…hah its a very long story that one.And so to bed…I have actually slept most of today…my body is not keeping up with brain. Meanwhile, I have learnt so much.
Not least that this is a huge leap forward the various agencies are working together to make a difference, not working in isolation seems a novel concept. In addition ‘patient voice’ ie Jacq was mentioned so much I am guessing that too is novel. Bet they wished they had someone more polite. frrr. Right to bed and my ‘Tesla’ recharge too. More anon.
Daily Stent. I cannot cure you but I can make you laugh (citation Jerome) 
emails:
From P:
J
If this is not already a blog it needs to go online. So, get on with it – nothing else to do, after all!!
P
From G:
Good morning J – thanks so much for a splendidly irreverent read which contained so much critical learning for all in the Continence world. I was challenged by a ‘4’ showing on the alarm clock this morning as I head to Edinburgh for an NHS Scotland review meeting and you made me laugh out loud in a very quiet Heathrow.
Have a lovely weekend recharging and do send me any link to any ‘official’ blog you may be putting online.
Kindest regards
G
PS: Infamous pink cardie should nearly be in Bedford by now?!
from M:
Great writing. Love the Prof Lee story!
LM
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email…..From: D
You have been so busy! You are so great, they are obviously hugely delighted that you are there bringing light at the end of the tunnel. Hard not to make bad puns really isn’t i? xxxx
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